Wednesday, February 29, 2012

'Personal Growth' Mandate Passes Committee

By Kristina Torres
Atlanta Journal Constitution


A bill requiring "personal growth" activities for people who apply for food stamps in Georgia passed a Senate committee Monday, two days after the same committee approved drug tests for parents who seek welfare.

Changes to Senate Bill 312, however, could limit its reach. To get it passed, its sponsor, Sen. William Ligon, R-Brunswick, agreed that it could be implemented only once there was enough funding. Officials with the Department of Human Services have said they can't afford the program right now because of millions of dollars in state cuts to their budget.
Ligon agreed to only pilot the program in five counties to be selected later. He had to add a host of exemptions, including for anyone who worked at least 30 hours a week, had a child under the age of 6, was a student enrolled at least part-time, was developmentally disabled or who received unemployment. He also dropped a proposal to require the same for parents who seek welfare.
Activities mandated by SB 312 would include working toward a GED or high school diploma, receiving technical training, attending self-development classes or enrolling in adult literacy classes."If you are receiving a public benefit, you need to work to improve yourself," Ligon said.
It passed the Senate Health and Human Services Committee on a party line 8-3 vote. Democrats dissented, saying it was unnecessary and hurt people who were already struggling.
The committee also trimmed down the mandate Monday requiring drug tests for parents, removing Medicaid recipients from the bill. Senate Bill 292 would apply to applicants for the federal Temporary Assistance for Needy Families program. TANF provides temporary financial help to low-income families with children.
The bill's sponsor, Sen. John Albers, R-Roswell, said it would save the state money and help addicts by identifying those who need assistance. Albers based the proposal on Florida's drug-testing law, which a federal judge has temporarily blocked. Albers said he felt he had properly addressed confidentiality concerns.

Friday, February 24, 2012

FREE Powerful Tools for Caregivers Class

Mother and Daughter
Powerful Tools for Caregivers 
 
Join us for a FREE 6-week class to support caregivers of individuals with developmental disabilities

 Every Wednesday, March 7th - April 18th
10:00 a.m. - 11:30 a.m.

125 Clairemont Avenue Suite 300 Decatur, GA 30030
              • Develop self-care tools
              • Reduce personal stress
              • Communicate effectively
              • Make tough decisions
    Participants will also receive The Caregiver Handbook

    To register, please contact Riki Bolster at (404) 822-5397.

       
    Aging and Resource ConnectionAADD Logo

    Thursday, February 16, 2012

    A Rally For the Disabled

     (2012-02-16)


     (WABE) - About 2,000 people rallied in front of the State Capitol today to call on the state to increase the amount of money it spends on the disabled. Advocates used the annual gathering to talk to the disabled and to lawmakers.

    "We just want the community to know that we're paying attention to what the issues are that they're faced with," said Georgia Council on Developmental Disabilities deputy director Patricia Nobbie. "We want legislators to know that there's a community out there that's active and paying attention to what they're doing up here at the Capitol."

    Every year, Georgia spends money on 100 waivers. Governor Nathan Deal told the crowd he wants the funding to continue.

    "We are putting in place strategies and tools that empower these individuals to live independent, productive lives," said Deal.

    The waivers cover the cost of moving disabled Georgians from state hospitals back to their communities. However, Nobbie says there are disabled people who were never moved out of their communities who don't get the state assistance they need.

    "We got 750 kids graduating every year with no support," said Nobbie.

    She says her disabled daughter was unemployed for years after high school until she got help from a state funded job coach.

    "A lot of parents end up tag teaming employment or somebody ends up quitting a job to stay home and stay with somebody" said Nobbie. "It doesn't really take a whole lot of funding to help somebody get a job and stay in a job."

    She recommends the state spend $3,500 a year on a job coach, transportation and personal support for disabled Georgians graduating high school. Through Medicaid, the federal government matches state funding. Nobbie also says funding is needed for disabled Georgians being cared for by aging parents.

    Tuesday, February 14, 2012

    The Bar Mitzvah of Benjamin Avi Faber

    By Paula Krone and Michael Faber
    Like most parents, from the time we gave birth to our son, we had many hopes and dreams for him. We wanted him to have a good education, have friends and grow up to live a happy and prosperous life. We also had dreams of our child being brought up in the Jewish religion, and we hoped our child would embrace all that Judaism has to offer. Of course, we had hoped that he would pass some part of ourselves, including our Jewish heritage, to his children. It wasn’t long after Benjamin Avi was born, however, that we knew that many of those dreams would never come to be.
    Benjamin Avi was born with a rare, genetic disease called mitochondrial myopathy. It is not one of the genetic diseases typically associated with the Jewish people. This one affects both Jews and non-Jews of all races and cultures. Mitochondrial myopathy has caused Benjamin’s cells to not produce enough energy for his body to function as most people’s do. As a result, Benjamin cannot walk, cannot talk and has poor fine motor skills. He cannot chew or digest food properly, and he is considered legally blind. He has seizures, a feeding tube and has been diagnosed with moderate mental retardation, an intellectual disability that still leaves us questioning what he understands and what he does not. Although the effects of mitochondrial diseases vary greatly between victims, the one commonality seems to be a shortened life expectancy, although medical science cannot predict that very well. There is currently no cure for mitochondrial myopathy or any of the many other mitochondrial diseases.
    It is with this backdrop that we embarked on a journey to keep Benjamin healthy, and to help him lead a happy, fulfilling and meaningful life. Part of this journey included bringing Benjamin up as a Jewish child. From the time Benjamin was a tiny infant, we took him with us to Friday night Shabbat services at The Temple in Atlanta, Georgia. When we were at home or driving in the car, we all listened to Hebrew music by Debbie Friedman, Craig Taubman and a host of other musicians. To this day, Benjamin’s favorite music selections are those sung in Hebrew. Benjamin loves Hebrew music so much that, when he was in sixth grade in public school, the speech therapist used Craig Taubman’s Friday Night Live CD to encourage him to communicate.
    While we knew we could send Benjamin to a non-denominational Sunday school for Jewish children with disabilities in Atlanta, we very much wanted Benjamin to attend religious school in an inclusive environment with the other children his age. In 2002, there didn’t seem to be very many special needs children attending religious schools in inclusive environments, so we turned to the URJ for guidance. They talked with us, and they sent us a book entitled Al Pi Darco: According to Their Ways. After reading that book, we were encouraged to pursue a Jewish education for our child in the regular religious school. So, we decided to enroll Benjamin in the Temple Bremen Religious School when he was 4 years old.
    For the first year of religious school, pre-kindergarten, one of us (Benjamin’s parents) stayed in the classroom and served as Benjamin’s aide. For kindergarten, an adult with an education background served as Benjamin’s aide. By the time Benjamin got to first grade, however, Benjamin was assigned to his first teenager who would help him in the classroom. Michelle Maloney became the first of, thus far, seven teen tzadikim. She would serve in that role for two years until she left for college. Ever since then, Benjamin has had one teenager assigned to be with him in the religious school classroom each year. Coincidentally, Michelle also served as Benjamin’s group counselor for several years at the day camp at the Marcus Jewish Community Center in Atlanta. (She is now grown, and works as a special education teacher in a Georgia public school.)
    As the years went by, Benjamin seemed to enjoy going to Friday night services, attending Jewish day camp in the summer, listening to Jewish music and celebrating the Jewish holidays, especially Chanukah and Passover. Yet, we still thought about and yearned for the day that Benjamin would have a bar mitzvah.
    Now that years were passing and Benjamin was not physically or mentally developing as we had hoped, we wondered how he could possibly have a bar mitzvah. Oh, yes, we were told many times that a boy simply becomes a bar mitzvah just by turning 13 years old. However, we did not want Benjamin to become a bar mitzvah merely by turning 13 years old. We wanted him to have what many other Jewish boys have when they turn 13. We wanted him to have a ceremony where he would be called to the Torah.
    At some point, we had to let go of our picture of what a bar mitzvah looks like and of what we might imagine Benjamin’s bar mitzvah would look like. With the unwavering support of Rabbi Rau, the Director of Education at The Temple, Rabbis Berg, Reeves and Lapidus, and Cantor Numark, Benjamin’s Bar Mitzvah service began to take form and shape.
    It was decided that the beautiful historic sanctuary would be used for the service, but its bimah was too high for a wheelchair ramp. So, The Temple created a small, low bimah using a riser connected to a ramp that a Temple member built for the event. The date chosen would be on Shabbat Noach, ten months after Benjamin turned 13, so that two hundred fifty Reform Jewish teenagers from around the Southeastern United States could witness this special event when they would be in Atlanta. The part of the Torah that would be read would be about the rainbow, a symbol that has been used around the world by all religions to mean inclusion of all people.
    Two of Benjamin’s religious school classmates, Ben Furman and Elliott Williams, volunteered to read from the Torah for him. Benjamin’s mom would read the part for which Benjamin would have his aliyah. Benjamin would use an electronic communication device with eight buttons, loaned to him by Gwinnett County Public Schools, to say the blessings before and after the Torah was read. Other aliyahs would be made by Benjamin’s doctors and by some of the Temple staff who had become like family. After the service, there would be a dessert Oneg that would consist of baked goods brought by Temple members, enough to feed over five hundred people and have plenty left over.
    When October 28, 2011 came, we brought Benjamin to The Temple in his new gray suit, with his new purple tie. When the service began, Rabbi Berg wrapped Benjamin in the beautiful rainbow tallit that the clergy gave him as a gift. Benjamin had come into the sanctuary already wearing the matching kippah. In his parents’ eyes, no other bar mitzvah boy could ever have been as handsome. When Cantor Numark began to sing, Benjamin began to rock back and forth. When it was time for Benjamin to lead the congregation in prayer, his current religious school aide, Abby Bocenic, helped him push the buttons on the communication device. As the buttons were pushed, the pre-recorded voice of teenager Ben Hirsch sounded through the speaker system in the sanctuary. Our son was becoming a bar mitzvah.
    When it was time for the reading of the Torah, the actual Torah was passed down from family member to family member until finally into the arms of Benjamin’s dad. Then, a miniature Torah was placed into Benjamin’s lap. With Rabbi Berg carrying the Torah and Benjamin being pushed in his wheelchair as he carried the miniature Torah in his lap, we all participated in the processional around the sanctuary. As one long-time Temple congregant had put it, she had never seen the congregation so joyous.
    After the reading of the Torah portions and after Benjamin completed his aliyah, the congregation sang Simintov and Mazel Tov and then sang a modified version of The Sabbath Prayer from Fiddler on the Roof. (May you have good friends who’ll stand by you. May you always have a good home. Strengthen him, oh Lord, and never let him feel alone.) At the end of the service, the entire clergy, now joined by our beloved Rabbi Emeritus Alvin Sugarman, put their hands on Benjamin and gave him the Yevarechecha blessing. As noted by Judy Cole, our amazing pianist who played the incredibly beautify music throughout the service, that was the time that just about everyone in the congregation cried.
    God called upon hundreds of people over the course of thirteen years.
    He had a very special task he needed each of them to do for a special child.
    When called upon, each one without question said
    “Hineni. Here I am.”
    When all the planning, building and preparing was complete,
    God’s special child was called to the Torah.
    And all the people rejoiced.
    And God saw that it was good.
    It took hundreds of people and one very special child.
    There can be no doubt that God’s voice came through loud and clear that night.
    It was then that God said to all of us
    “Hineni. Here I am.”
    And we all know in our hearts, in our minds and in our souls,
    that what we did was good.

    The Future is Now Conference

    SAVE THE DATE
    The Future is Now
    A one-day conference to plan for the future of individuals
    with developmental disabilities

    Friday, April 13, 9:00 AM – 3:30 PM
    King  & Spalding, 16th Floor, 1180 Peachtree Street, ATL, 30309
    Register at www.aadd.org/news -- $25 per registrant

    Program
    Guardianships, Conservatorships & Health Care Directives
    – Jim Outman, Attorney, Law Office of James B. Outman, LLC

    Special Needs Trusts
    – Shelly E. Nixon, Attorney, Lefkoff, Duncan, Grimes, McSwain & Hass, P.C.

    Panel on Exploring Support Options
    ● Cheryl Harris – Information through Aging and Disabilities Resource Connections (ADRCs)  ● Robert Bell, Department of Behavioral Health and Developmental Disabilities  – Information about state programs   ● Sheryl Arno -- Post Secondary Education –college programs   ● Stacey Ramirez -- Center for Leadership in Disability, Georgia State University  – person–centered planning   ● Riki Bolster -- Introduction of The Future Is Now family classes
    Housing
    – Doug Scott, Department of Behavioral Health and Developmental Disabilities  Housing Coordinator

    Employment
    – Nancy Brooks-Lane, Employment First Georgia and Doug Crandell, University of Georgia, Institute on Human Development & Disability



    For more information, contact Riki Bolster at bolsterr@bellsouth.net

    Organizing Workgroup of the National Disability Leadership Alliance

    The Organizing Workgroup of the National Disability Leadership Alliance (formerly JFAAN) hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period.

    To ask questions via CART: Sign-in to the Chat function on the right side of the transcript and type your question.  One of the call facilitators will read out any questions posted there.Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00pm and end the call promptly at 2pm (eastern time). A few other reminders about call etiquette:


    ·         Say your name before each time you speak
    ·         Speak one at a time
    ·         Speak slowly and as clearly as possible


    TUESDAY, FEBRUARY 21, 1:00pm-2:00pm Eastern Time (10-11 Pacific)

    Call in number: 712-432-0080

    Code: 193134#

    CART: The call will have real-time captioning (CART)! The website where you will be able to view the captioning is http://www.2020captioning.com/livefeed.php?event=AAPD Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call.


    So you can mark your calendars now, Organizer’s Forums are held on the 3rd Tuesday of every month.  If you have suggestions for call topics or presenters for upcoming topics, please email them to jlehman7@gmail.com or dcoleman@cdrnys.org.

    Labor Department May Face Makeover

    The Atlanta Journal-Constitution
    Gov. Nathan Deal and state Labor Commissioner Mark Butler are fighting a multimillion-dollar tug of war, and many disabled Georgians believe they are stuck in the middle of it.
    In the biggest financial attack on an independent, statewide elected officeholder in years, Deal is proposing to eliminate about two-thirds of state funding for Butler’s Department of Labor. Butler would lose about half of the department’s employees, and he may have to lay off dozens more.
    Meanwhile, Georgians in wheelchairs, the blind, the deaf and others with disabilities say Deal’s proposal imperils a Labor Department program that helps them find work, and they have turned out in force at hearings on the plan in the state House. Others say the concerns are unfounded: The program in question is simply shifting from one department to another.
    Deal’s budget proposal does an extraordinary amount of shifting, cutting the Labor Department’s overall state-federal spending from $553 million in fiscal 2011 to $136.8 million next year. Among the specifics:
    ● Federal workforce training money would go to an obscure agency run by a political ally of Deal’s. The budget for the Governor’s Office of Workforce Development, run by Tricia Pridemore, would go from $5.1 million this year to $73.4 million. Deal had backed Pridemore to chair the state Republican party, but she didn’t get the job.
    ● Safety inspections done by the Labor Department for years would move to the Agriculture Department. The ag agency already does some inspections, and Deal wants to centralize them in one department as part of his overall play to consolidate services.
    ● And in the move that has caused the most consternation, the Department of Human Services, which handles welfare, food stamps and child protective services, would now be responsible for training and getting jobs for disabled Georgians.
    A bill to finalize the move of vocational rehabilitation programs to DHS is expected to be voted on by the House soon. The proposed transfer has alarmed some Georgians with disabilities.
    “Right now, it feels like a power struggle with the disability community in the middle,” said Mark Johnson, who suffered a severe spinal cord injury in 1971 and is director of advocacy for the Shepherd Center, one of the nation’s premier rehabilitation facilities.
    No loss of services?
    Supporters say no services would be cut under Deal’s plan.
    The Labor Department would continue to handle unemployment claims and most job placements.
    Butler, a Republican who won election in 2010, said he doesn’t know why Deal — a fellow Republican elected on the same ballot — wants to cut away large parts of his department. Butler has been particularly aggressive in fighting the move of the vocational rehabilitation programs for the disabled.
    “If I thought it was going to be a good thing, if I thought it would be beneficial, I would endorse it,” he said. “I don’t think taking people with disabilities and shuffling them off to a social service agency is a good thing. This is a jobs program and the Department of Labor is trying to get people back to work.”
    Deal’s office said it’s all about consolidating services in agencies that fit the mission of those services.
    Deal spokesman Brian Robinson noted that the governor’s budget calls for consolidating two departments and merging services in agencies other than the Labor Department next year.
    “The governor is looking for savings, but he’s also looking to maximize services with existing resources,” Robinson said.
    Some supporters of the changes say Labor Department programs have been mismanaged in the past. For all the complaints about moving the vocational rehabilitation program, some lawmakers say the Labor Department has cut the program’s budget in the past, although records show spending on vocational rehabilitation has gone up and down the past few years.
    $700 million in debt
    Legislators also are known to be anxious about the more than $700 million the state owes for money it borrowed from the federal government to cover unemployment insurance payments, which have increased dramatically during the economic downturn. Deal’s budget includes $33 million to pay interest on the unemployment trust fund loans, due Sept. 30.
    Lawmakers are nervous about the possibility that they will have to increase taxes on businesses in an election year to pay the trust fund back.
    Some say Deal was backing a different candidate for the job Butler won -- an assertion that Deal's office said is not true. Shortly after Deal won the election, he hired Melvin Everson, aGwinnett County lawmaker whom Butler defeated in the labor commissioner primary, to head the workforce development office.
    Everson has since been transferred to another job in the Deal administration, and his workforce development position was given to Pridemore after she lost her bid to become GOP chairwoman last year. Robinson, the governor's spokesman, said Deal did not support anyone in the labor commissioner's race.
    ‘A misguided belief’
    People with disabilities packed two recent meetings of the House Human Relations and Aging Committee when it took up the bill transferring the rehabilitation programs. Dozens also sent in letters to the committee, protesting the change.
    Rep. Doug Collins, R-Gainesville, Deal’s floor leader, is among those pushing the change, even though he has made glowing remarks in the past about his daughter’s experience at the department’s Roosevelt Warm Springs Institute for Rehabilitation. The institute offers job coaching, vocational evaluations and certificate programs.
    Collins, who was appointed to the committee around the time it took up the bill, said the disabled would get a wider range of services if the programs were shifted to the Department of Human Services.
    But some disabled people said they are worried that the move assumes they are looking for handouts, rather than a helping hand to find a job. In the Labor Department, the disabled were like everyone else, they said: Georgians hoping for training and a chance to work. By going to DHS, they said, they would be segregated, as they had been at times in the past.
    “The DHS does not have a clue about people with disabilities,” said Alice Ritchhart, a blind Brunswick woman. “They have a misguided belief that we are all so disabled that we cannot possibly hold down any kind of job other than sheltered employment.
    “Under DHS, I can only see the taxpayers of Georgia having a bigger burden because DHS thinks the solution is to keep us on welfare.”
    DHS Commissioner Clyde Reese disagreed, saying his department “has a strong focus on employment and putting people to work.”
    Butler’s staff said the Labor Department has been showing results. For instance, the number of individuals with disabilities who have gotten jobs through the program has increased 24 percent — from 3,902 to 4,834 — in the past decade, they said. The number of disabled Georgians the DOL worked with went from 35,492 in 2009 to 39,738 in 2011.
    The department has also put a lot of money into improving programs, schools and other facilities for the disabled in recent years, Butler said.
    Moving jobs
    Under Deal’s budget, about half of the 3,600 jobs in Butler’s department would be transferred to other agencies. Butler said he may have to lay off some of the staff that remains because of the loss of money. One Labor Department document says 80 to 133 jobs would be lost in department “career centers.”
    The department also said the state would have duplicate employer marketing efforts, data systems, reporting and other employment services and lose federal funding because of the changes.
    But Rep. Tom McCall, R-Elbertson, sponsor of the rehab bill, said the move will merely pick up a program and move it to another agency. “Nobody loses a job,” he said. “Nobody loses services.”
    Former Labor Commissioner Michael Thurmond, a Democrat, said the change is simply wrong.
    “Sometimes you have to move beyond your personal political agenda,” he said. “Why would you take the risk of doing this when you have potentially hundreds of thousands of lives in the balance? It would be an unforgivable sin to do it.”

    Wednesday, February 08, 2012

    AADD Volunteer Orientation

    Do you want to make a difference in your community?  Are you passionate about helping others?  Do you enjoy having fun while doing good?
    Girl and her Teacher   

    If you answered yes to any of these questions, we enthusiastically invite you to attend AADD's first volunteer orientation of the year!   

    Orientation Details
    March 14, 2012
    125 Clairemont Avenue, Suite 100
    Decatur, GA 30030
    6:00 p.m. - 7:00 p.m.
    Please join us to learn more about the exciting volunteer opportunities available at AADD!  RSVP to Suzie Fatkin by Tuesday, March 13.

    Thursday, February 02, 2012

    Cathedral Antiquest Show Countdown!

    AADD is extremely excited to be the 41st beneficiary of the Cathedral Antiques Show, which begins today, February 2-4, 2012!  Don't miss the opportunity to hear lectures from renowned celebrity designers, and, of course purchase spectacular antiques from dealers around the country! 

    Funds from the Cathedral Antiques Show will be used to create a new AADD Family Support Crisis Center, which will offer training and support services for individuals and families living with developmental disabilities. The Family Support Crisis Center will provide a unique, comprehensive array of services, resources and support customized to meet the varied and changing needs of each individual and family.