Wednesday, March 19, 2008

Update on HB 984

First of all, the Governor's Council on Developmental Disabilities and the Georgia Advocacy Office want to express appreciation for all the thoughtful letters that were sent to the Senate Committee members prior to the discussion on HB 984. As a result of the interest and concern demonstrated by parents of medically fragile children that the state seriously consider the implications of licensing transition facilities, the committee engaged in an extended and thoughtful discussion and asked many questions of the presenters. The bill was ultimately approved, and will probably be voted on in the Senate in the next few days, and we expect it to pass. The issues around the legislation would not have been this well-aired without those letters from parents and constituents, so again, we thank you for taking the time to make your concerns known.

The advocates considered the pros and cons of adding amendments that would have to be offered on the Senate floor for the purpose of requiring some outside oversight so that children do not get stuck in transition, and the staff assisting in the transitions have the support of the resources of the state when they are needed to move children to permanent, loving homes. After discussions among the sponsors and proponents of the bill, it was determined that involvement in rulemaking (regulations) would be the most effective way to address our concerns that there be watchful oversight of the children in transition. We have begun those conversations with the Division of MHDDAD, and we will be involved as these arrangements are worked out.

Should there be opportunity for the community to comment on the regulatory process, we will certainly make you aware of it through our various networks, and will welcome your comments. This was a challenging issue, and our end goal is to continue to encourage the state to focus on creating and sustaining "A conceptually coherent policy for integrated life in the community for people with disabilities and the people who support them."

Thank you for your support in this effort.

Pat Nobbie and Josh Norris

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